tuesday evening

gen had another big day today. we got the wheelchair adjusted so it goes faster than a snail's pace. we have two speeds but have been asked to use only the sane one. the other is way too fast. we care too much about passersby to use that one. the man who adjusted it also tested it, and as he flew by our room, we heard him yelling "whee!" that was a good reaction. in ot she worked with the mobile arm support, and fed herself a few bites of applesauce. speaking of food, she had three real meals (still pureed food and thickened liquids). because of that, she didn't have any tube feedings at all. they are talking about taking the feeding peg out because she can get her food and her medications by mouth now. we are in charge of getting her medications on time (they handed us a list of medicines and times and told us we were in charge now) (!) we also feed her the meals and help with cleaning and dressing. her trach site is healed over and they said there will not be a scar. tonight they took out her picc line, because they were not using it any more for lab draws. the feeding peg is the only foreign thing she still has, so we are excited about getting rid of it hopefully. in speech therapy she worked more on speaking, and breathing. ot also hooked up a sip and puff that controls not only the nurse call light but also the tv. when they get that adjusted right, gen will be much more in charge. thank you all for your care for gen; thank you for the prayers i know you all are praying for her. i believe the effectual fervent prayer of a righteous man availeth much. i know that God knows what is best and what we all can handle at each moment. i am so grateful that He doesn't give us more than we can bear. He cares that much about us. thank you all also for the cards. we had to put up another string to display the new ones from this week so far. gen loves to get mail and loves to hear the comments on the blog too. thank you all for going through this with us. we feel loved and honored.

susan